Just a quick hello to say i am still alive. I have so much to say about how much this tosser of a disease has destroyed my life! I will be back very soon, this grid2 is slow going  
 
Just a quick update.
  Chris is strugeling with his hands latey so hes unable to update his blog or reply to msgs that he recieves so hes asked me to bring you upto date as much as i can. The extension looks amaizing now the walls are built and the roof is on so i guess its not long now untill he can use it! family and friends are still pulling together fund raising doing an amaizing job. Il try and reply to comments as best as i can, he still reads them he just cant reply, il most prob see him next week so il try and write some more.

Disney

31/10/2011

5 Comments

 
Had a great time at Disney, Hollie loved it. We did have a few problems with the hotel when we first got there but Polly got it sorted, the worst thing was when i had to climb down steps off the coach, i managed get down with Pollys help but lost balance once off the couch and fell, now the driver and 4 other people just stood there and watched Polly strugegle to get me up! ignorant gets.
Sorry this is short but typing is so cdifficult.. I will try get something sorted. OT has been changed, extension  is at a standstill at the min awaiting building regs.
The fundraisers continue to work their arses off, so proud of them all.
 
Still not back to my best but there is a slight improvement. The time is almost here to go disneyland Paris, hollie cant wait :-) we go friday morning, im quite nervous about goinf but hopefully it will be fun.

Update

12/10/2011

2 Comments

 
I am now on antidepressants! currently the lowet ive been. dont really know what else to say. Struggling like hell to type due to my left hand going down hill fast.
 
Its all going well with the extension, i posted a few pics on facebook.
I am having a hard time with my left arm, i'm in agoney, not sure if its artheritis! cold got in or somert, anyway i cant type very well which is bugging me! updates may be slow till its better.
Oh my rubbish OT is being changed ;-)

Hope to be posting more soon.
 
Sorry if i havnt replied to comments or messages, their is a lot going on at the min an im just not with it lol.
 
The tosser is so good, went on my arse again yesterday but this time more damage :-( sprained my ankle and twisted my knee! Yes it bloody hurt.
Work is starting on extension, our door is going in first then the hard work begins.
Polly is off to Ireland on sunday so got 2 babysitters coming in.
Sorry this is short, just not in mood at min, struggling.

 
Work will be starting on the extension next week, its great to finally think things are moving,  im getting desperate to get it done and cut out the stairs, that fear the life out of me!

Not feeling myself today, had a few beers and a game of poker last night and how difficult it is to do the simplist things, hobbling round with my new delta walker (no offence but its not attractive at 36) sitting next to my commode, drinking out of a baby cup and when eating i make more mess than a baby! Depressing.
 
Their is none lol, feel very deflated over the whole thing, a few of us discussed this on facebook, we all seem to feel things have sped up since we started it, surely this cant be the case but it does get you thinking.

Fighting My Losing Battle with MND.