Drained

The last couple of days have been pretty hard in terms of strength/energy, my legs feel terribly weak, my left arm also very weak and the fingers are starting to curl more. Its a bit of a kick in the teeth to be honest, if i am on the real deal in the trial its certainly not doing anything to slow this tosser down! When i got diagnosed and it was just my right hand it seemed to be pretty slow for 6-7 months, right up to the wedding in Feb i felt it wasnt to bad, if you saw the video you wouldnt think much was wrong, but since then its as though its sped up, so much has changed in this last 6 months compaired to the previous 6, I do think its about time the tosser gave me a break! 
You do wonder if the Riluzole i started at the begining  is really giving me that extra 3 months, would i have been worse off without it? who knows, for the first time i feel like i could just scrap it and take nothing, the Baclofen certainly does sod all beside give me a dry mouth.
When i went hospice yesterday the girl doing the massage on my back, neck and shoulders  commented on the twitches, all over my top half just how fierce they were, she was surprised i wasnt getting muscle pains or back trouble. I'm pretty used to them now as i dont think their is one limb that doesnt have them. 

There is a low point coming, i can feel it, must be like a womans time of the month lol. The trip to Brighton tomorrow is gonna be a killer, lets hope ive not got too low when i return.