You do wonder if the Riluzole i started at the begining is really giving me that extra 3 months, would i have been worse off without it? who knows, for the first time i feel like i could just scrap it and take nothing, the Baclofen certainly does sod all beside give me a dry mouth.
When i went hospice yesterday the girl doing the massage on my back, neck and shoulders commented on the twitches, all over my top half just how fierce they were, she was surprised i wasnt getting muscle pains or back trouble. I'm pretty used to them now as i dont think their is one limb that doesnt have them.
There is a low point coming, i can feel it, must be like a womans time of the month lol. The trip to Brighton tomorrow is gonna be a killer, lets hope ive not got too low when i return.