Now the moan, losing my speech has to be one of the hardest things yet, the frustration is imence and doing my nut in, i feel bad when somebody doesnt understand me because i show my frustration but its me getting angry with myself! Food is a tough one too, my little tetras (tiney fish ) eat more than me! Choke on almost anything, no more madras is gutting.
Oh wheelchair got fixed today.
Whats it like living with MND?
Take your worst nightmare and times it by a thousand and your still nowhere near! Its HELL, watching your body waste away in fast forward, like rigamortice setting in before im dead, ive more than one foot in the grave, more like only just poping my head out! And thats that.