Had my first visit from community nurse today and i feel a lot better about things. Why i was not refered 12 month ago is a mystery, to find this out from another sufferer and making the call myself is not the way it should have been, anyway its sorted now. Quite a few things have been noted and a few referals being made ;-) one of which was hospice, which at one time i wouldnt have fancied but now and after what i was told off a forum member i think it will be a good thing.